"And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me." 2 Corinthians 12:9

Wednesday, March 24, 2010

I was looking back at last year around this time and found this...

Noelle Eating puffs from that jon jackson on Vimeo.

OH we have come so far but I love the little wiggle she use to do when she was happy, she still does it a little bit.

My life ONE year ago was very full I had a newborn, a one year old and a almost 3 year old, now I have a one year old and a two year old, a almost 4 year old, and in two and a half months a newborn.

I have come to rest in and lean on this verse:

2 Corinthians 12:9 - "And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me."

For all of you moms out there that have asked me lately how I do it well this is how. Christ is my strength and He carries me through my day. That is Everyday if I try and do it on my own I fail but NEVER have I asked and God not picked me up and wrapped His powerful arms around me and carried me through the hard days.

I hope that encourages you just like it does me.

God bless you

Wednesday, March 17, 2010

Noelle's Birthday ( sorry a little late)

Noelle is TWO Years old!!!!!!!!!!!!!!!!!!!!

I can not believe how fast the time has flown by. It is amazing to me to think about all that has happened in the last two years.

Here are some pictures of the party!

The Cake!!!
From 03.15.10 - noelles birthday

She was very excited about the cake but not the candles.
From 03.15.10 - noelles birthday

Admiring the cake. Noelle just wants to eat it.
From 03.15.10 - noelles birthday

Cyann trying to blow the candle out.
From 03.15.10 - noelles birthday

Loving the cake!
From 03.15.10 - noelles birthday

By the end of the night Noelle was a little overwhelmed by the end of the night.
From 03.15.10 - noelles birthday

Noelle I cant believe you are two years old. I love every little moment with you. I rejoice in your accomplishments and smile at your funny little habits. I love my neck snuggles in the mornings and all the many hugs throughout the day. You make me smile everyday. Thank you sweet Dittle Bug. I am looking forward to what this next year holds for us.

Love Mommy

Tuesday, March 9, 2010

Egg Allergy

Did you know that if you have an egg allergy you need to be careful about getting the flu shot and MMR?

I did not know this till today. I have found that Noelle and Cyann have reactions to eggs. But little did I know that my hesitancy to get the flu shot and the swine flu shot were justified in this case. Thank you God for not letting me feel comfortable with getting those shots.

In this case my mommy instincts were right on.

While at the doctors office for Noelle and Cyann's well checks I mentioned that they both have reactions to eggs. Well our wonderful doctor was a little concered about the shots that they were supose to get and checked to see which ones they needed. No MMR today they have to special order one that is not grown in an egg. Yes they grow the vaccination in an egg. They also grow the flu vaccine in eggs as well.

You learn something new everyday dont cha. Rest assured there is a flu shot that is available for people with egg allergy you just have to special order it.

here is some more info on the subject if you would like to look into it:


Monday, March 8, 2010

The very scary diet

****I want to preface this post with the acknowledgment that many many people deal with the food issues mentioned in this post and they do a wonderful job, this is just me trying to figure it all out****

Yes I am scared of Noelle's diet or I was scared of it.

I don't at all like change. I like spontaneity but I don't like change when it comes to the hard and fast rules of my life, like FOOD. I had no experience with food intolerance, I did not know there was a difference between an intolerance and allergies but I have learned, and at times not willingly.

Noelle is not able to have: Cow dairy, Gluten, Soy, and Cinnamon I am still wondering about Eggs not sure yet.

In addition to intolerance to the above list she has a tendency to develop intolerance's to things that she eats to much of. So to prevent that from happening I rotate her grains and proteins. For example I don't give her the some grain or protein more than twice a week, Monday Wednesday she might have chicken but Tuesday Thursday she would have beef and Friday Sunday would be pork or fish and Saturday would be a vegetarian day. Yeah I know kinda crazy to keep track of but I am making it work and we can be a little flexible.

I say all that to say the Gluten free thing really was hard for me to grasp. I understand what it is and what she can and cant have it was the everyday cooking and baking that I had a hard time figuring out.

But rest assured I think I have it now and I am inventing my own recipes. I have found that Noelle can have Oats (which are gluten free if you buy the right brand). So I have made pancakes, muffins, chocolate chip cookies, and fruit cobbler all with oat flour and Noelle is loving the new additions to her diet.

And my new find is Chick fil a will make chicken strips without the breading for you in a kids meal or any meal (no extra cost). I was so happy to find this out we can go out to eat at the kids favorite place without packing a meal for anyone. Also Noelle is starting to figure out that she is not getting what everyone else has so it is getting harder to eat things that she cant have with out a good look alike sub for her. You cant really tell a 2 year old the consequences of eating ice cream, they don't get it yet, So most places have a non dairy cool whip that they will give you instead of ice cream and every time I have asked they have given it to me for free.

Friday, March 5, 2010

Cyann is One year old

I cant believe my baby is one.

It feels like just yesterday that she was so tiny.

Happy Birthday girl!!!!
From 03.02.10 - cyanns birthday

From 03.02.10 - cyanns birthday

Such a big girl...she loves that cup.
From 03.02.10 - cyanns birthday

The cup cake that I made for her.
From 03.02.10 - cyanns birthday

From 03.02.10 - cyanns birthday

From 03.02.10 - cyanns birthday

She kept blowing up instead of out...but Daddy helped.
From 03.02.10 - cyanns birthday

YUMMY this is so good
From 03.02.10 - cyanns birthday

Love the messy birthday cake face.
From 03.02.10 - cyanns birthday

From 03.02.10 - cyanns birthday

Wednesday, March 3, 2010

Spread the Word To End the Word

(This is re-posted from http://theweekesfamily.blogspot.com Please join us in stopping the R word. I dont think I could say it any better than Kelly does in her post today)

Today is the day. The day to Spread the Word to End the Word. The word I am talking about is retarded. It is actually a clinical term for referring to intelligence but it is often used as a hateful term. Every time someone uses that word to insult someone or something they are saying that if you are retarded you are less. Our precious daughter may very well be categorized as retarded. Are you saying that our baby is anything less than perfect? We don't think so. So think before you use this word in a playful or insulting way. Our language frames how we think about others and it is one of the most powerful tools we have.
Take the pledge with us to eliminate the r-word in everyday speech.

So leave a comment today and let us know that you have our Anna Kate's (and Noelle's) back and you will help us Spread the Word to end the Word

Here is a post from a fellow RTS mom. Her words are just perfect.
Thanks Terri

I don't talk about it much, as there are all sorts of assumptions about a mother's perspective floating around. Sometimes it's assumed I am speaking from a gaping wound I have, one caused by having a daughter who was born with mental retardation. Bitterness is often attributed.

I don't have any gaping wounds or bitterness. What I have for my daughter is pride, hope and respect. I have what every mother of every kid has, the desire for her child to find her place in the world and make the most of it. I want for her to know what fulfillment feels like.

But the misuse of a clinical term is a bit of an obstacle to this. As long as people choose to use the word as an insult, there will exist a misconception about the capabilities and value of people who are indeed affected by cognitive differences.

The usual counter to what is packaged into political correctness is to piffle at it - bah, it's just a word and it's my problem if I choose to be hurt by it. I am not actually hurt by it. Nor is my daughter. Hurt is not the right word. I am disappointed by the choice to use the word this way. If regular joe's think it's fine to say, then we are far from the society we can be, we profess to be: one that not only accepts differences, but celebrates them. We're just not there yet.

And this is not a freedom of speech issue - a rule that the word be erased from today's vernacular altogether is not what the campaign is about. We all know it's just a word. It's about rising and becoming a culture where people opt in to respecting those that are often either invisible or marginalized. Use the word all you want. Just keep it clinical and factual.

I know this - when the word retard or retarded is flung to amuse and insult(those of typical cognitive function, that is) simultaneously, I do know that it is not with direct, intended malice to my daughter or anyone intellectually diverse. The effort to encourage thought before throwing out this word to describe something less than desirable is not about the uprooting of purposefully bad intentions people have towards those with developmental disabilities, towards my child - I think those intentions rarely exist, if at all - it's about looking at the big picture to see the affects misuse of this word has on general acceptance and true inclusion (as opposed to just tolerance and/or patronization) of people like Addie. It's about awareness and mindfulness, really. Perpetuating the misdirected use of a word that describes part of who my daughter is stands in the way of my ultimate goal of ensuring she is a full citizen of the planet, contributing in meaningful and valuable ways.

A soapbox this is not. I am on the ground with everyone else. I too, have used this word in the past in just the ignorant ways this campaign is attempting to enlighten. A small chunk of awareness was bundled in with the packet from the geneticist containing our daughter's diagnosis a few years back. Bonus free gift.