Vacation here I come!!!!!!!!!

So we are leaving to go on vacation tonight. We will be gone until the 31st. I will take lots of pictures and show you all when we get back. Until then have a wonderful rest of the month.

noelle and daddy talking

So my little one loves her daddy. Noelle has started reaching for Jon's beard. She loves to touch it. I have a very cute video of it..


I love it. You have to listen to it so turn up the sound.

Change of plans

Well it has been a full week. Noelle was scheduled to see a developmental specialist in Oct, his earliest new patient apt. Well they had a cancellation on Wednesday at 10:30 so they called and we got in three months early. Praise the Lord! He is doing some genetic testing to confirm his diagnosis Rubinstein-Taybi Syndrome.
It seems that she does not have any of the major health problems just some physical symptoms. It is a big praise that we got in to see him because he recommended not to do Noelle's eye surgery right now. So we have canceled it until she is closer to one.
This Syndrome can be very bad but as of now she is doing really well the doctor was very impressed with her development. He wants us to keep doing what we are doing add some speech therapy in a few months and maybe some physical therapy too. He is going to do a brain scan in a few months and we will do the eye surgery hopefully in January or February.
to be very honest it has been a hard week for me just trying to wrap my head around everything and feeling very overwhelmed and unable to deal with all of this. God has given me a peace that has washed over me and now I feel more at ease with everything.
It is hard because my parents are having a hard time accepting all of this. Every time I talk to my mom she tells me some horrible thing about the syndrome. It is hard.
God is my anchor. My strength. My ever present help in trouble.

Mixed emotions

Today my little girl Noelle had an eye appointment. This was a follow up to our first visit which was last week of May.
Nothing has changed which was good, nothing got worse. So I scheduled her surgery. It will be Aug. 18th at 7:30 AM.
This means that that wonderful vacation we were looking forward to will be delayed. :( I have mixed emotions about all of this I am happy that we can get the surgery done sooner than later but I was really looking forward to vacation.
So it looks like we will be going on vacation end of Aug. first of Sept. One up side it should be cooler then. :)
Aren't they so cute. I love my girls. So we have preop appointment on the 14th and then surgery on the 18th. Please lift us up in prayer.